Doing Life With Someone That Has Epilepsy
To my followers, I’m sorry I haven’t put out a blog in a while. It has been a whirlwind for me the past couple of months, and it wasn’t even seizure related. I’m proud to say that I’m just over five months seizure free! It’s amazing to see the progress my team and I have made so far. Like I say so many times, be patient. I’ve had epilepsy for 18 years now and we continue to fight the battle each and every day. Doing life with me can be hard sometimes, so I want to devote this to everyone helping me through my epilepsy journey, including my followers.
I honestly don’t know how you do it. Like this past week when I was battling double vision, you always knew the perfect time to check in on me. You know exactly what to say and do, yes drinking more water counts :) I wouldn’t be where I am without you. You brought faith into my life since day one when I had my feet surgeries. I do know that you get some of it from Eric Church…
You’re the reason a seizure doesn’t phase me (or any other injury). You instilled toughness from day one and it still carries on. I know how much I can bug you at work, but you always find time for me. The advice and information you give me whether it’d be what to send to the Cleveland Clinic or house stuff, it always works. How do you know and do that? Letting me pitch the day after my first seizure was one of the best things you did! “Stay strong”
Dear Rach and Nick,
While you’re always there for me if I do have a seizure, you make living with epilepsy so much easier just by joking around or going golfing. I know it’s not easy putting up with me sometimes, but sibling fun is a cure that you bring to me. Rach, I will miss you, but know I can count on you anytime I need help.
To My Cleveland Clinic Team,
It’s been a long time now, and I’m grateful for each person I interact with. Dr. Nair, you have kept the faith on severely reducing my seizures. It hasn’t been easy throughout the years with bad side effects, but you managed to fix them (and hopefully one more time). I have to give a shout out to all the nurses in the epilepsy center as well. Whether I met you in person or communicated via the app, you make being a patient at the clinic so much easier.
Whether you're a family member, friend, doctor, or just a follower, I greatly appreciate each and every one of you.